Breaking The Silence

Some have heard.  Especially those that live here in the wonderful community of Lago Vista.

Others may not know what has been happening for the past few weeks.  Here's the Cliff's Notes:

I was in an awful car wreck on October 30th.  The driver and another passenger died in the crash.  Myself and the driver's wife survived.  I'm not going into details of what happened here on this blog, but I will say that I'm lucky to be here typing this.

I want to let everyone know how thankful I am for the well wishes, the meal train, the gifts, gift cards, prayers and visits.  I am so grateful for every single one of you.

I know that my mom, dad and friends were sending updates while I was in the hospital, but those have come to a halt now that I am home.  For those of you who hadn't heard about the wreck, then here is the list of things I am dealing with:

Lacerated spleen and left kidney, all of my ribs on the left are broken (we have 12 on each side) and 8 through 11 were broken on the right, bruised lungs and a few vertebrae are fractured.  If you have heard of the transverse process, that's mostly what the damage is on the vertebrae.

The road ahead will be long, but I have the opportunity to do it.  And for that, I'll gladly do the work.  My mom is here with me to push me and help me get better every single day.  She is my rock and my hero!!!!  She's showering me, helping me in the bathroom (I'll save you the graphic details of this), charting the med schedule, sleeping in bed with me to get me meds in the middle of the night and that's just the basics.  There's SOOOO much more.  Yeah...... she's a total rock star!!!!

I'm in the bed a lot for now, but I have learned how to log roll to sit myself up ALL BY MYSELF! Then my mom is right there to get me in my back brace. Although my ribs are probably halfway to being healed, the combination of broken back and the amount of broken ribs has presented me with some issues.  I also have severe nerve pain in my left arm and hand.  I have no answers on that, yet, but will be looking for some VERY soon.  Anyhow.... mom gets the brace on me, then I'm set.  My exercises include 4 walks around my couch with a walker every day.  You know those breathing exercises at the hospital where you blow/suck air into a plastic thing to measure lung capacity?  I'm doing that, too.  And I have to sit in a chair braced up for a couple of hours a day total.  Yup.... super exciting things!!!

So that's where I'm at for now.  I will be getting my first car ride since coming home from the hospital on Monday.  Mom will pack me in safely in the back seat with the front seat moved forward all the way.  Then, we'll make the 5 minute drive to Lago Vista Physical Therapy.  Hopefully, they'll be able to provide me with a few exercises to get be back in action sooner rather than later.

That's about it for now.  Thank you again for all of your love and support.  It doesn't go unnoticed.  I love you all!!!!

Birthdays and Balloons

I guess it's been a while since I've written.  3 months to be exact.  There are a bunch of reasons for this:

• This summer was 100% insane.
• Then school started and I thought it would get better.
• Nope..... because it's football season.  We are coming close to the end though.
•  and work..... work, work, work

I can't wait for November 1st.  As much as I love watching my kids play sports, I'm ready for some down time.

Somewhere in the middle of mi vida loca, we've had some birthdays.  We got to celebrate Bowen turning 12.  I can't believe that next year, I will have a teenager.  And two days after Bowen's, Bryce should have turned 39.  My mother gently talked me into doing something special, while I was trying to avoid October 7th from rolling around.  She said a balloon release with 39 balloons would be nice.  We were going to make all of Bryce's favorite foods.  And the boys and I were to write goodbye letters.  The boys did and they were wonderful.  I just couldn't do it.  I did write him letter though.  I just plainly stated that I will never tell him goodbye.

I was hoping that this would be cathartic for all of us.  It was immediate family only.  I wanted people to be able to express their feelings in a safe place.  If my boys needed to cry, then I wanted them to cry.  And we all cried.  The letters were written, shredded and stuffed down into a balloon.  The boys did great.  I cried so much that week and earlier in the day, I was all tapped out by the time we sat down for dinner.  I just can't tell him goodbye though.  I can't take his clothes out of the closet.  I can't move his shoes from outside my garage door.  I'm still hanging pictures of our family.

I know that he's gone.  Trust me.... I get it.  I'm just not saying goodbye, yet.  I am happy.  I am moving forward.  The boys and I are getting into a pretty good groove these days.  and seriously..... I AM HAPPY!  But how do you say goodbye to someone that changes your life forever?  He made such an impact on this world.  He truly was one of a kind.  And don't worry, he will not be idolized.  I have often told stories of when he was a complete #$%head.  Are any of us perfect?  I know that I'm not.  It's just that even with his imperfections, he was still a really amazing man.  When we met, he didn't realize it, but he was saving my life.  When he made me a wife and a mother, he showed me grace under fire on a daily basis.  We were a passionate couple, despite the fact that he said passionate people annoyed him.  He was passionate about loving his family.  He may have been terrible at communicating emotions, but he loved us fiercely and we knew it.  And for the past few years, he showed me what strength really looks like.  When pain, fear and death were looming, he boldly faced life anyways.  He did that for me and his boys.

So how do you say goodbye to that?
I just decided that I wouldn't.

I was terribly sad the week of his birthday.  My parents came up for days to "help" us through it all.  They are the unsung hero's.  Everything was perfection.  They didn't just help though.  My parents cooked, cleaned, did my yard, repaired appliances, brought up the helium tanks, bought the most perfect shade of blue balloon.  They did it all while they mourned Bryce, too.  They loved him, too.  They know what he did for their daughter.  They felt the Bryce impact, too.  Yet they still selflessly did everything for Bryce's birthday, while I just wanted to crawl into my bed and wake up on October 8th.  My parents are rock stars.  I will never be able to fully convey my appreciation for Bryce's birthday.  What they did turned into a present for me, my boys and the rest of Bryce's family.

As for the goodbye from me, it won't happen.  Again, I am happy and moving on.  But I can't say goodbye to everything that we went through.  All of the the things to get us to where we are today were worth it.  I can't say goodbye to the lessons that we learned together in life.  I can't say goodbye to how we chose to raise our children.  I can't say goodbye to him.  I will see him again in eternity.  I know that.  I also hope that he enjoyed his first heavenly birthday.  As for the party we threw for him here, it was beautiful and perfect.

Another special shout out to Keith Mayhew.  Thank you for these amazing pictures.  Need drone photography?  Call KeeSnap ;)

The Summer Mother Conundrum

co·nun·drum

kəˈnəndrəm/

noun

1. a confusing and difficult problem or question

2. a question asked for amusement, typically one with a pun in its answer; a riddle

There you have it folks.  And moms....I am mostly talking to you this round.  Summer has this appeal to it.  It seems like we'll all be vacationing more.  We'll relax a little more, because we have the time.  There's no school.  Schedules??  Pffffttttt...... WHO NEEDS 'EM?!

I am here to tell you.  I NEED THEM!!!!!!

I've had this mom gig for nearly 12 years now.  This is how our summers have worked:

• I was married and working.  I did the day care thing.
• I was stressed out.
• I was afraid that it wasn't the right decision because my kids were away from their parents all day
• I was married and not working.  So I did the summers with them myself while the husband worked.
• I was stressed out.
• I was with my kids all day trying to make them do chores and reward them with a dip in the pool
• Finding things to entertain them became an obession
• The lack of a schedule nearly destroyed us all.
• Last summer, I was married and neither of us worked.  So we road tripped for a month.
• I was stressed out about needing to find a job with insurance
• OK.... so that's about it.  Last summer was pretty great.
• This summer, I'm a single, working mother.
• I'm foundering
• I'm stressed out
• I have been shuffling my kids around for a month and a half
• I miss my kids
• They miss me
• I wake up in a panic "Where am I?"  "Where are the kids?"

This is what I've decided.  Summers really aren't as much fun as they're cracked up to be.  Another thing..... schedules are pretty important.  Not only do I thrive on one (and I've known this about myself for years), but my kids absolutely need one.  So far this summer, my kids of been with my parents, my sister in law, a lot of time with my mother & father in law.  They've seen some friends.  They've swam in some pools.  We've camped with our friends.  We boated, swam in a lake, had some fun for the 4th of July.  Monday, I was EX-HAU-STED!!!!!  Now, they are with my brother.  The week after that they'll be at home just chilling while I have my brother completing some construction on the house (***shameless plug: Call Rictin Construction***).  I can't WAIT to come home to my boys every day next week.  Then, Bryce's parents will take them for the last week of July.

That ends it though.  The boys will go for a month of summer program.  Basically, it's a fun day care.  But I can't say "Day Care" in front of Bowen.  They NEED the schedule.  Maybe even MORE than I do.  I just can't handle the shuffling.  And why do I have to feel guilty about this?!  Why do I put that on myself.  The one common problem in everything I wrote up there about my summers.... I was stressed out.

Mother shaming happens day in and day out these days.  I shouldn't feel guilty for doing the best thing for my family.  So for 1 month of the summer, they will go to bed at a decent hour, have field trips, come home to have a family dinner and go to bed at a decent hour.  I won't have to wonder where they're spending the next day.  I won't have to wonder if they're OK with whatever and whoever they are with for that day.  They'll be right where I put them and they'll be fine.  The weekends can be reserved for us to "go make memories" or whatever fun saying people are stitching on pillows these days.

and I refuse to feel guilty for it.

Secondly, if you ARE having a crazy, fun summer where you can sleep in and go on excursions every day, then good for you!!!  You don't have to feel guilty for that either.  The bottom line is that if moms are wondering if they are ruining their kids and they stress about it, then they are doing OK.  It means that they think about it and they love their babies.  I know I love mine.  I miss them.  I'm ready to start trying to manage our schedule ourselves.

I always called us the Fantastic Four.  Well, we're figuring out how to work as a team in Tres Stobb.  I think we're doing alright..... but the real work is just now getting ready to start.

Happy Father's Day

Rough week for me.  But I have some really great guys in my life and they shouldn't go unnoticed.  My words aren't really coming out the right way, so I'll keep it short.  With my parents help, the boys got me a Father's Day present.  I completely lost it..... sad tears, happy tears, all of the feels.  I have a great dad.  He definitely needs props for being awesome.  I got to watch the Astro's game with him and my boys on Friday night.  I'm thankful to Gary for giving me Bryce.  Then there's Bryce and my boys.  I'm so grateful for the boys that he gave me.  And I'll forever be thankful that my boys had such a wonderful daddy.

On a Positive Note

I realize that most of my posts seem sad.  When I decide to write, I might be sad, actually.  However, I really am doing OK.  This past Saturday was 3 months since Bryce moved on to a better place.  And that anniversary came the day before my 39th birthday.  I know if I'm distracted, I won't wallow in self pity.  Therefore, I planned for fun things.

There for a while, and I still have little fits of it, I had a hard time with guilt.  I felt like smiling was wrong.  If I had a day of fun, I would end up in bed for 2 days afterwards.  Bryce would have never, EVER wanted that for me.  I just wrote his last blog about The Final Hours.  I felt so much guilt for not being there when he died.  It cut me to my core that I wasn't there.  Eventually, I started to see past the sorrow and I started to see that God had everyone perfectly placed that day.  I was meant to be at the doctors office with him that morning.  I was meant to see his face look so..... so.... done.  He was tired.  I blabbed on and barked out the next steps.  He laid his head back on the table and just closed his eyes.  He was so damn tired of having to make plans, discuss next steps, go through surgeries, inject poison into his veins.  Just. Done.  But here's the thing about that guy, he would have continued so that his boys would see him fight.

I've told many people this thing about cancer.  Cancer saved my marriage.  Cancer showed my boys what being a fighter looks like.  Cancer gave me back my faith, and it's stronger than ever.  Here's the biggest gift though.

                                       Cancer brought Bryce to Jesus.
          Therefore, Cancer gave me the guarantee of seeing Bryce again in eternity.

Back to the doctors office that day.  There's a part of me that wonders if he prayed right then and there and asked for God's mercy in this fight.  He never wanted us to see him waste away.  He'd lost 10 pounds that week.

No wait.  I need to divert my attention again.  Here's another interesting tidbit:  Bryce's biggest fear (and mine too) was that the boys would get home from school and find Daddy dead or something.  A week or 2 before Bryce's hospital stay in January, he'd asked his mom to come live in her vacation house that's minutes away from us, because he wanted someone to be able to check on him while I was working.

Back to the day of..... His mom drove him back to my house after the crappy news that the tumor was growing.  They were having a lovely visit with Alan and the girls.  Gary went to go get AJ from the bus stop.  That's when it all happened.  Had his parents not been there, AJ would have found Bryce bleeding from his stoma.  If Bryce's family members had not been there, Jerrie would have done this all by herself.  Gary was down the street getting AJ.  When they walked in, Bryce's cousin got AJ away from everything and for the rest of them, it was all hands on deck.  Consoling, grabbing towels, helping Bryce or EMS in anyway they could.  God put them there because they knew how to help and what to do.  I would have been useless.  I know now that I was not meant to see it happen.  God didn't want it that way, because he knows I would never have been able to handle it.  To be quite honest, I didn't handle it well not seeing it.  But my 38 year old husband died..... no one should handle that is any grace. The blood all over my bathroom and bed and floor was all could handle.  I wouldn't have done well seeing it ACTUALLY happen.

Two of our best friends, Amber and Keith, happened to be around the corner.  My mom called her and they were here to help in minutes.  Amber says that she's the one that grabbed me when I was running to the helicopter.  She and a cop stopped me.  It was meant to be Jerrie that held his hand in that moment.  She was with him when he entered this world.  She was there when he left it.  It needed to be that way.

Taken by my old friend, Michael, when he saw us randomly pedal by

I say all of that to say that I process things constantly.  Writing helps me.  I've avoided this because it's hard to write these things.  I also write it to say that I will not apologize for smiling and having fun when I need to.

Months ago, my best friends, Leslye and Graham, booked a pub crawler for Bryce.  We were supposed to go out and have some fun.  It was booked for the beginning of December.  The week of, Bryce found out about this last nasty tumor.  Les called to postpone the ride for another time when he felt better.  I guess you could technically say that Bryce is currently feeling better than ever; at least better than he had in months.  Unfortunately, he is no longer here with us.  SO.... I decided that the 3 month anniversary and my birthday we were going to cash in on this fun ride.  And fun was had by all!!!!!!!!!

When we got home, my new neighbors had a spread for us to eat & play porch games.  My sister in law, meanwhile, was handling both boys.  Bowen had a tournament near her house.  They've been getting him there while I just had some adult fun.  Yesterday, I had a group of ladies with me while we painted pallet signs at a local business in town.  SOOOOOO much fun.  I made two, but the biggest deal for me was the #BStrong logo.  It's going on my porch.  I have posted it on facebook, but I'm going to post it here once it's hung on our porch.  Bryce loved entertaining and having a house that people loved to be at.  That WILL continue!!!!!

So, here's the deal.  We're getting along.  I have LOTS of help right now.  People are loving on us and I am so grateful.  I'll never be able to thank everyone for everything they've done.  Heck..... I'm still writing thank you notes for all of the donations!!!!  We have our sad days, but our days are also filled with so much more.  It's OK to cry.  But it's also OK to laugh.  I think I'm laughing more now than I have since November.  Maybe even longer!

Bryce doesn't hurt anymore.  Bryce doesn't feel pain.  Bryce isn't sick.  God removed that burden from him.  Look, I miss him.  Sometimes, I overwhelmed by it.  Sometimes, it sneaks up on me and scares me or I'm shocked by it?  If THAT makes any sense.  Father's Day is coming up.  That's going to be a hard one, but we're going to do it.  The boys and I WILL get through it.  If Bryce could endure all that he did, the least I can do is look up to the heavens and smile at him through my tears.  He gave me his best years.  He gave me the two best parts of him.  He taught me that I could do anything I wanted to do.  HE supported ME in whatever I wanted!!!  My favorite was that we laughed together.  SO many laughs.  That's all he wants for all of us now.  Just keep on.  Remember him fondly. "Live. Laugh. Love." is stitched on pillows all over America.  Bryce actually did.  So the boys and I will, too.

Once In a {New} Lifetime Trip

Bryce's group of friends is unique.  There's a couple handfuls of people that he's been close to since elementary.  I've heard of these things every once in a while, but it's rare.  These guys have literally known each other all of their lives.  There's a BuNcH of them and they're STILL the best of friends!!!

A while back... maybe 2013... Bryce's childhood bestie, Robby, got married in Grand Cayman.  Of course we went.  Bryce was the best man.  We said "No matter the cost, we're going.  This is a once in a life time trip!"

At that time, Bryce had already experienced the original tumor.  It was during that trip that he knew something was wrong again.  Sure enough, when we got home, it was confirmed.  Tumor #2 had arrived.  It made going to that wedding that much more special.

When Bryce died, we knew there was another destination wedding coming up.  We just couldn't plan for that; he was way too sick.  He told me that I could go (uhm... yeah right), but my place was with him.  Anyhow, someone that may wish to remain a secret decided I was going to go to Jamaica, if I wanted to.  I said yes.  Who wouldn't?!

The date is now upon us.  So Monday, I freaked out, cried all day, wished I could back out.  Here's the deal, I don't travel well.  I hate to fly.  When we went to Cayman, I made Bryce draw up wills.  As the day got closer, I flipped out and wondered why we were on the same planes.  If we'd flown separately, our boys would at least have one of us.  Bryce knows that I just need a little bit of a medical assistance to relax.  No big deal, he'd get me there, get me off of the plane, on to another plane, feed me along the way.  He'd hold my hand.  He'd make fun of me when I got a little out of control.  No matter what, he'd take care of me.  Monday, all of the terrible pre-flight things went through my head:
Why am I getting on a plane?!
My kids need me here, not at the bottom of an ocean.
I'm all they have left, this is so irresponsible.
I have too much work to get done.  I'll never get it done in time.

But most of all..... I miss Bryce.  My travel companion.  My safety net.  My lover.  My friend that I laugh with the most.  The one I can reminisce with later about the things we did.  My everything.

So, I cried about all of those things.  And while I was in the middle of fully freaking out, my buddy, Keith, said to me {in a very sad voice} while trying to console me, "Man..... that really sucks.  You have to go to Jamaica."

That, my friends, is what you call perspective.

There have been tiny pieces of time that I feel like Bryce has been talking to me in the last couple of days.  The bottom line is that I'm at the airport.  I'm having to start life all over again.  This is just going to be another trip of a lifetime.  My new lifetime.

I can't wait to see our friends get married.  I watched this love blossom at the very beginning.  I can't wait to watch them say they want to be each others everything too.... FOREVER!

I might cry the whole time I'm on the plane.  My brother says that I might cry the whole time I'm in Jamaica, but at least I'm crying in Jamaica.  I will get to see some of B's closest people for the first time since his service.  I think that seeing them during such a special occasion will be pretty great too.

Here's some promises:
I will miss my boys immensely and I plan to video chat with them every day.
I will enjoy myself and recharge.... for myself and my boys.
I will start the last blog post on Bryce's blog to tell the story of his final hours.
I will watch Stella got her Groove Back on my flights over the ocean.
I will take lots of naps!

With that, I'm going to sign off.  And maybe nap.

From Out of Left Field

I was REALLY having a great day.  I have felt evil trying to take blows at me for a few days.  B-U-T, I'm in a good place and felt like God lead me to make decisions that reflect a Christian attitude instead of letting evil win.  I was in a GREAT place this morning after my prayers.

On my way to work this morning an old friend called me.  I haven't talked to him in years, but we play Words With Friends.  He made the phone call this morning and I shared how I was in a good place sooner than expected, because I'm celebrating that Bryce gets to live in heaven now.  He asked if he could pray with me before we hung up.  I had no idea that he'd become SUCH a devoted Christian.  He was always a Christian, but he's really walking the walk these days.

Don't get me wrong.  I miss Bryce so hard that I am experiencing physical side effects.  I talk to him every night begging to make me feel his hug when I dream.  I wake up at 3 in the morning with my skin irritated, because I didn't feel his hug and I toss and turn while I talk to a dark room..... all of it.  I don't just miss him.  He is missing from me.

However, I'm happy knowing that he is pain free.  I'm excited that I'm going to see Bryce again one day.  I planned his cremation and have started the process of executing Bryce's wishes.  Then, the call comes in.  Bryce's earthly body has officially become ashes.  Now I'm crying at work.  Bryce was so big and strong.  I can't seem to figure out how to process that he's been reduced to plastic baggies.  8 plastic bags of ash.

I know there will be hurdles.  I face them every day.  I definitely face them at night.  Last night, I slept.  That was HUGE!  I'm sure it's another reason why I felt so much better today.  I set up a few steps of my own.

1)  I needed to get through "Though You Slay Me" without becoming a blubbering mess in order to come back to work.  DONE!

2) I wanted to be around friends without feeling weird, including meeting new people, before I would commit to a wedding engagement in a month.  CHECK!

3)  I needed to get back to church and smile among my people before I would even consider singing in front of them as a member of the praise team.  CHECK & MATE!!

There are a few other steps I have put in place for myself.  Steps.... protection for myself and my boys.  Other steps are things that I know will help me process it all.  I will eventually (but very soon) finish his blog with what happened the day he unexpectedly died.  I think that they are all part of the process.  I need to get back to Camp Gladiator.  I'm ready.  I'm seeing my cancer counselor on Thursday.  I had been avoiding her, but I'm ready.  I just didn't anticipate feeling this way when I got the call from the crematorium.  I even emailed them this morning to see where we were at with things, because I didn't like the thought of Bryce waiting to be cremated.  So, why do my tears feel like a slap in the face?

Grief...... the never ending roller coaster.

A Weeks Walk as a Widow

Widow.  I'm 38 years old.  It just sounds weird.  Facebook says I'm still married.  I feel married.  I AM MARRIED, but my husband is gone.  I feel loss, but don't think I've felt the real brunt of that loss yet.  I think that will come when I finally suck it up and go back to my responsibilities. I'm just not ready.

I have felt a range of emotions over the past 11 days.  I wonder if I'm feeling the right way.  I wonder if this is what it's supposed to feel like.  Yesterday, Bryce's mom read me the 7 stages of grief.  That helped.  I think it will continue to help me.  I know I feel loss, but not knowing if I'm feeling it the right way makes me feel lost.
Loss..... lost.
I lost him.  I feel loss and lost.
Ugh.
And at other times, I'm fine.

I've been in hiding for a couple of days.  Everyone, including the boys, left Saturday afternoon.  It was blissfully quiet.  I lounged and started a documentary.  Yesterday, I decided it was time to do some adulting.  I got my car to the shop.  A friend had their friend come to look at some things that need to be fixed on my house.  I was getting to know my new neighbors.  Everything was fine.  I actually smiled and laughed last night.

Then, it happened.  2:00 in the morning, I am awake with my heart pounding out of my chest.  My skin hurts. I can't sleep.  I can't stop moving.  It's like a drug withdrawal.  Bryce was my high.  He's gone and I feel it hit me hard for the first time since his service.

In a moment, I'll go pick up my car.  I will come home to start filling out more paperwork because my husband died.  Insurance papers.  Is this really my life right now?  It doesn't feel right.  Nothing feels right.  I need to learn to forgive myself.  I need to stop second guessing how I feel.  I need to just be in that moment.  If it's happy, be happy.  If it's sad, be sad.  Mostly, I need to find my way into my new life and do it in a way that honors my husband.

I'll try to not be crazy.  But if you see me around and I look crazy, that's just where I'm at for the day.

No. I Don't Want To Talk About It.

There's a lot that's happened.  Usually, it's no news is good news for us.  That hasn't been the case around the house lately.  Since the hospital trip for Bryce, things have changed and he's just sick.  Last Monday, he got the news that they didn't think the trial drugs were working.  Today, we received his scan results confirming that.

The short and sour details....
Cancer is getting worse.
He's off the trail.
We have to find something else.  FAST!

Feelings:
Devastated
Pissed
Incredible Sadness

What's Next/What Does That Mean?
We have no idea.
We have a lot to think about.
We have the horrible job of telling our kids the news this weekend.

And no.  I don't want to talk about it.

Home!

Home has never felt so good.  Seriously.  Our home is clean, because an anonymous friend came to clean it.  Bryce has clean sheets to lay in, because another friend said they love to come home to clean sheets and wanted to do something helpful.   Both friends don't know what it means it us.  it's a LOT

We heard sometime before 8:45 this morning that everyone had cleared him to come home except for the Neurology team.  So we waited.

and waited.
Lunch came.  I ate some of the snacks and food that friends had brought us, so that didn't have to travel home with us.

and waited.

************crickets************

and waited..........

7 hours later, I flipped my lid.  I cussed at everyone I could find.  I started packing our bags.  We were leaving.  I told Bryce and our favorite nurse that this wasn't prison.  I didn't need anyone's permission to take him home.  The nurse tried to do everything he could to get us to stay.  He saw me packing and told me that he was calling them to TELL THEM "she's packing."

And I did.  I loaded up the first load that I could carry down to the car myself while Nurse Marc made the phone call.  When I got back up there to take the 2nd load, I was informed that we were miraculously getting discharged.  We never did see THOSE doctors.  I think they were too scared they'd get an ear full.  And they would have!

Anyways... that's behind us.  My guy is home and showering in his own home.  He will smell like his own soap when he's out of that clean shower.  He can sleep in his own bed that has fresh sheets on it.

SOOOOOOooooooooooOO......  some have asked about the unicorn theme.  I give to you the origin:
bastobb.blogspot.com/2014/05/heres-deal.html
I didn't have a blog, but Bryce had already started his.  This was during the surgery in May of 2014.  I was the guest writer to keep people informed during the process.  Please take note of the last photo in that blog.  Bryce was in love.  Actually.... here it is again in all its glory

I mean LOOK AT IT!!!!!!!!!!!!!!
The majestic unicorn exhaling flames and has lasers for eyes?!  And then the kitty!!!!!  Wearing a bandanna holding a golden gun?!  COME ON!!!!!!  It doesn't get better than this!!!!!

So Bryce found it when he caught up on all of the guest writing I had done on his blog, and the love of unicorns was born.  We now firmly believe that the unicorn is Bryce's spirit animal.

So there you have it.  We're home.  As for the giant unicorn we received at the hospital, we might be calling him Champ.  More on that another day.  Tonight, we rest.  at home :)

B's Hospital Stay~Day 4

NOW WE'RE GETTING SOMEWHERE!!!
I think one of my biggest fears in all of this is that we were going to be sent home without any answers.  Bryce's biggest fear hit him hard again last night.  That's when it always hits him.  He's afraid to go to sleep, because he thinks he isn't going to wake up.  He told me again last night "I think that this is just it."  Well, I just KNOW that it isn't!!!!  So, back to me and my fears :D

I want to know what this is and why it's happening.  I thought it was a seizures.  They hooked him up to an EEG for 30 minutes, but nothing happened during that time.  Yesterday, they hooked him up for 24 hours.  As much of a pain as that is, we needed this episode to happen while he was being monitored on the EEG.  And as much as he hates these episodes, we're fortunate that he had another one this morning while he was hooked up.

ANSWERS:
GOOD NEWS!!!!!  He doesn't appear to be having any seizures.  This appears to be what is called a vasovagal (vay-zoh-VAY-gul) response, or VVR.  There is a nerve (I think it's called the vasovagel nerve, too) that runs along where your carotid artery is and acts as your fight or flight nerve.  If you see blood and pass out, it's because of this nerve.  This nerve can drop your blood pressure FAST!  And THAT'S why he passes out.  His blood pressure drops.

Really technical drawing of Carotid thingies.

Another side effect of the VVR is sweat.  You know how when people fight for their lives or are very scared in a situation and they become stressed, they actually stink differently.  Stress sweat smells different.... worse, to be honest.  My husband doesn't ever stink to me.  Even if he feels like he's gross, he doesn't stink.  That or I just like his stink. :)

Another thing is the body will "bear down" during the VVR.  Some equate it to trying to poop.  Some people when frightened WILL poop.  Others puke.  That's why Bryce feels nauseous.  THAT is what I actually saw that made me think he was having a seizure.  The "convulsions" were actually his body's reaction to the VVR.

CAUSES:
His tumor is literally califlowering out of his neck.  It's grown.  a.LOT! very quickly.  There is tissue between the tumor and his carotid.  However, the CT of his neck shows that there is 33% compression of his carotid.  No one is actually very worried about that, as odd as that sounds.  There are other pathways to help with all of this.  If it gets pinched off completely, but slowly over time, it may not be an issue at all.  Weird.

Additionally, he has sever muscle cramps through his neck/shoulders/chin.  This has been happening since the first round of radiation back in 2013.  Then he was hit again with it in 2014.  Two summers in a row of being cooked from the inside out has its side effects.  Cramps are one of them.  His are pretty horrible.  With that all said, what we THINK is happening is that carotid and nerve are getting pretty tight in there because of this @$$hole tumor.  Then he gets a cramp and may not even realize he's cramping in a weird way.  BOOM!  Cramp sets off a VVR and it's man down.

SOLUTIONS:

Thank you San Fran Crew!!!

We're supposed to see an Electro Physiologist.  This is a cardiologist (heart guy) that is very specialized in his field.  We'll be here another night while the EP and the Neuro discuss and figure out the best way to treat him.  Lord knows, we can't have Bryce falling out all of the time.  NO THANKS!!!

I think that's going to be about it for today.  Sometime around 3:00, they'll take the electrodes off of Bryce's head when the 24 hours is up for the EEG.  He wants a shower.  Then we're going to see our boys today!!!!!!  MiMi is going to pull them out early so we can spend some time with them in Bryce's room.  Bryce's sister will come up again tonight and sit with him, while I go have dinner with my little guys.

The outpouring of love and support is astounding.  My response time today is bad.  I'm just starting to wear down.  There's been a lot of activity, and we're finally getting somewhere, but I'm tired and starting to crack.  I need to see my boys today.  I need to drink more water.  I need to leave the room more.  I know all of these things, but that doesn't make me do anything about it.  At least I will get 1 out of 3 today.  So know that I love you.  I hope I'll get to respond eventually.

Hospital Stay~Day 3

I guess I jinxed it.  I updated while Bryce was in an MRI last night thinking that'd be it for the night.

WRONG!

As soon as his wheelchair was in front of the door to his room, I knew he'd had another one.  The cold rag over his head and eyes.  The slumped way he sat in the chair.  These things take a toll on him so bad.  He's totally wiped afterwards.

The way I hear it, he was in the MRI and doing OK, which is good.  He HATES MRI's because he has to lay flat and be still.  That's difficult for him, because he feels like he's choking.  After all of the surgeries, he is always on a bit of an incline. So yeah.... MRI's suck for him, but he was doing ok.  They pulled him out and gave him the contrast through the IV so they could put him back in.  He immediately started to feel it happening again.  He fought through it so they could get the MRI.  But when they pulled him out, it happened again.

A little information on what's happening when "they" happen.  Actually, I'm going to call them seizures.
1)  I have believed that from the first time I saw it on Monday.
2)  The doctors are now starting to say that's what they think it is, too.

So info on that.  He starts to feel nauseous.  He also gets a headache that starts coming in behind is left eye.  He KNOWS when they're about to hit when things start to go blurry.  Once he is out, his pupils dilate, there's weird and varied twitching, his diagram constricts like his trying to throw up, and sweat.  Not normal sweat.  Literally, head to toe, instantaneous, POOLS of sweat!!

Now we know that he's had 3 full seizures where he is unconscious.  The one at Texas Oncology right after the infusion.  The one as soon as we got to the ER here at Seton.  Then last night, just after they gave him the IV contrast for the MRI.  There have been a couple/few other instances when he feels the symptoms, but they fade and go away.

The list of tests:  blood cultures, an exam to check for internal bleeding, a CT of the head, MRI of the head, EEG, EKG, Echo-cardiogram
WHEW!
Next up for today...... a CT of the carotids/neck

This means they're going to give him the contrast again.  I'm a little nervous about how this is going to go.  However, Bryce and I both really want this test done.  The restriction of his left carotid artery is what he fears the most.  They also have this doppler / Echo-cardiogram like test that can be done in that area.  B-U-T, that's where his tumor is and they aren't sure that the ultrasound handle thingy will even work.  So, they haven't ordered it for him.

We saw Dr. Y, his oncologist and head of the trial, again this morning to discuss a few things.  We wanted to know if all of this is going to kick him out of the trial.  So far, he's good to stay in.  They started him on seizure medication last night.  They verified that it don't have any adverse reactions to the Keytruda that he's on right now.  All tests have been normal thus far.  Now..... he was only hooked up to the EEG for 30 minutes.  During that time he didn't have a seizure.  Soooo..... I feel like that was a waste of electrodes, but what do I know?!  We talked to him about the seizures happening when he gets injections of something.  That brought up something interesting.  The stuff in whatever injection takes up real estate in the blood/veins.  If he already has restricted blood flow (which isn't confirmed), is he not getting enough oxygen or blood to his brain?  Maybe so.  It's a point of interest.

I think that's about it.  I know the last couple of updates were hurried and in some ways vague.  This is a more complete idea of what's going on.  It looks like he'll be here another night.  Again, thank you to EVERYONE for all of the love, support and prayers being sent out way.  If you have sent me a message and I haven't responded, know that I still appreciate it.  If you feel like I've been short with you, I'm sorry.  Things can just get hectic at times in here.

And your daily dose of fun is brought to you by our friend, Marie
Unicorn Name Generator Fun/

B's Hospital Stay~Day 2

I'd like to start by saying thank you very much for all of the well wishes and prayers that have been sent our way.  And special thank you's to our friends and family that have been taking care of our kiddos, bringing us supplies and supplying us with company.

Here's the update and a little more about what has been happening.  Sunday morning, Bryce got out of bed just after 4:00 and passed out.  He hit the floor.  Actually, the metal trash can broke his fall.  So, he gained a nice gash on the back of his head from that.  Monday morning (yesterday), we got him up and ready, dropped kiddos off at school and headed to Texas Oncology for Cycle #2 of Keytruda, his trial drug.  He is in the 1st arm of the trial.  Keytruda isn't THAT experimental.  It is FDA approved for use with Melanoma and they have been trying it out on lots of other cancers, as well.  The trial drug is actually something else that he can get if things get worse.  Anyways, we talked to the doctor extensively about fears and realities.  Bryce lives with fear every single day that he will not wake up.  I have told him to pray and cling to the hope that he'll make it to Monday.  We told Dr. Y that we have no desire to be given a timeline for Bryce.  However, I needed for him to have some piece of mind.  "Will he make it 21 more days to come see you again for Cycle #3?"  He said that is a very attainable goal and looks forward to seeing us then.

Bryce was hooked up to his infusion and he didn't feel right.  The feeling would come and go.  He kept saying that he felt nauseous, and that's very weird because Keytruda isn't a kill everything kind of drug.  It's an immunotherapy.  He shouldn't be feeling THAT bad.  Anyhow, he got through it and was disconnected.  He walked to the lobby and he said he needed to sit down because he didn't feel right.  That's when it happened.  I thought it was a seizure, but I haven't really seen one before.  He was definitely unconscious, but had his eyes open for it.  The nurses and doctors called 911 and we took a ride to Seton Main.  It's only about 7 minutes away.  They were still working on hooking him up when it happened again.  I can give all the gory details of it another time.  Today's issue is What's Wrong With Bryce?!

Since we arrived yesterday, he's had an EKG, CT of the head, Echo-cardiogram, EEG and he's currently getting an MRI of the head.  They've taken blood for cultures and other tests.  They've checked his blood pressure laying, sitting and standing.  They checked him for internal bleeding.  So far, they see nothing.  Heart is fine, CT shows nothing,  EEG is normal.  He was not dehydrated.  He's eating enough, even though he has experienced a loss of appetite.  We just talked to the neurologist about an hour ago.  She said the description of it sounds like a seizure, but we do not know why it's happening.  Keytruda isn't known to do this.  Maybe it's because he hit his head Sunday when he passed out?  Hopefully, this MRI of the head will shed some light on things.  I think tht's the last test they can run for him.  Honestly, it feels like they've run every test possible

For now, we know nothing.  To hear that there's nothing wrong with him is nice, but he still doesn't feel right at times.  So there's nothing wrong, but there is?  I wish we had answers, but we may not get them.  They have started him on a seizure medication.  Hopefully, we get to take him home tomorrow, but we don't know that for sure.  We're both really tired tonight.  Once he gets back from the MRI, he's planning on eating and showering.  Then I think we're both going to crash pretty hard.

Again..... thank you so much for the love, support, well wishes and prayers.  I leave you all with a picture of our newest addition to Bryce's unicorn collection.  I'm still trying to name this big, beautiful bundle of joy.  Any ideas?

Bryce's Bad Day

Hello to All,
This will be brief, because I'm tired.  Today was exciting, but not in a good way.  Bryce went in for his next cycle of Keytruda.  As soon as he was disconnected and walking away, he needed to sit down in the lobby.  He didn't feel right.  He sat there for a few minutes and when I knelt in front of him he kept saying he was going to throw up.  Then boom, we was out.  I don't know if he just passed out or if he had a seizure.  The whole thing felt like forever, but was probably just a minute or two.

So, we're at the hospital now.  He was taken by ambulance.  His sister and our friend, Keith, were there to witness the whole thing.  Shortly after, his parents arrived.  They just happened to be pulling in town so that they can help us with a few things.  Right after we got to the ER, it happened again.  Not AS bad, but it happened again.

The boys are with some friends, so that his parents can come back to see him in the morning.  Keith is bringing us some clothes for the night.

I'll keep you all posted.  For tonight, we rest as much as possible.  Tomorrow, we hopefully get some answers to what is happening.