I'd like to start by saying thank you very much for all of the well wishes and prayers that have been sent our way. And special thank you's to our friends and family that have been taking care of our kiddos, bringing us supplies and supplying us with company.
Here's the update and a little more about what has been happening. Sunday morning, Bryce got out of bed just after 4:00 and passed out. He hit the floor. Actually, the metal trash can broke his fall. So, he gained a nice gash on the back of his head from that. Monday morning (yesterday), we got him up and ready, dropped kiddos off at school and headed to Texas Oncology for Cycle #2 of Keytruda, his trial drug. He is in the 1st arm of the trial. Keytruda isn't THAT experimental. It is FDA approved for use with Melanoma and they have been trying it out on lots of other cancers, as well. The trial drug is actually something else that he can get if things get worse. Anyways, we talked to the doctor extensively about fears and realities. Bryce lives with fear every single day that he will not wake up. I have told him to pray and cling to the hope that he'll make it to Monday. We told Dr. Y that we have no desire to be given a timeline for Bryce. However, I needed for him to have some piece of mind. "Will he make it 21 more days to come see you again for Cycle #3?" He said that is a very attainable goal and looks forward to seeing us then.
Bryce was hooked up to his infusion and he didn't feel right. The feeling would come and go. He kept saying that he felt nauseous, and that's very weird because Keytruda isn't a kill everything kind of drug. It's an immunotherapy. He shouldn't be feeling THAT bad. Anyhow, he got through it and was disconnected. He walked to the lobby and he said he needed to sit down because he didn't feel right. That's when it happened. I thought it was a seizure, but I haven't really seen one before. He was definitely unconscious, but had his eyes open for it. The nurses and doctors called 911 and we took a ride to Seton Main. It's only about 7 minutes away. They were still working on hooking him up when it happened again. I can give all the gory details of it another time. Today's issue is What's Wrong With Bryce?!
Since we arrived yesterday, he's had an EKG, CT of the head, Echo-cardiogram, EEG and he's currently getting an MRI of the head. They've taken blood for cultures and other tests. They've checked his blood pressure laying, sitting and standing. They checked him for internal bleeding. So far, they see nothing. Heart is fine, CT shows nothing, EEG is normal. He was not dehydrated. He's eating enough, even though he has experienced a loss of appetite. We just talked to the neurologist about an hour ago. She said the description of it sounds like a seizure, but we do not know why it's happening. Keytruda isn't known to do this. Maybe it's because he hit his head Sunday when he passed out? Hopefully, this MRI of the head will shed some light on things. I think tht's the last test they can run for him. Honestly, it feels like they've run every test possible
For now, we know nothing. To hear that there's nothing wrong with him is nice, but he still doesn't feel right at times. So there's nothing wrong, but there is? I wish we had answers, but we may not get them. They have started him on a seizure medication. Hopefully, we get to take him home tomorrow, but we don't know that for sure. We're both really tired tonight. Once he gets back from the MRI, he's planning on eating and showering. Then I think we're both going to crash pretty hard.
Again..... thank you so much for the love, support, well wishes and prayers. I leave you all with a picture of our newest addition to Bryce's unicorn collection. I'm still trying to name this big, beautiful bundle of joy. Any ideas?
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